Coming home is a process and sometimes each day has only enough spoons for that day and not enough for coming home. My last procedure for my endometrial cancer was in August and I was told to remove my toenail polish, all my jewelry and wash from head to toe with antibacterial soap twice and wash all my bedding and clothes I would wear to bed the night before and to the hospital. I have been home 5 days from my bout with deep vein thrombosis and pulmonary embolism but I am still not totally here…so I had to paint my toenails today.
If you aren’t chronically ill or aren’t close to someone who is, you might not know what I am talking about when I mention spoons, but basically, it is a way of talking about how much energy you have. If you are my wife, with untreated ADHD, you have many more spoons than I do. If you are a normal middle-aged woman you might have twice as many more spoons as I do…the number of spoons I have varies depending on how much pain I am in, what I did the day before, how much anxiety or depression is affecting me today and if there is something else happening that I don’t know about, like DVT or PE.
I never did repaint my toenails after my procedure in August. There have been lots of reasons why. Sometimes it is hard to come back home after being in the hospital and I just didn’t do it. But it is a vanity that makes me feel like myself and I should have done it as soon as I could sit up.
Having cancer has been not unlike any other diagnosis for me. I know it is there. I take my meds as prescribed. I drink my water. I have cut out some more of my favorite foods. (I should premise that my favorite foods have included tomatoes, pineapple, peppers, chilis, curries, and many other healthy foods). I do my exercises. I try to stay positive. I show up at the hospital when they tell me to. I planned it that way. In fact my diagnosis for arthritis bothered me more, it is not curable and it is debilitating. With cancer there is a chance it will be cured. The fact that I have cancer has made my body more susceptible to blood clots and the hormone treatments has also increased my chances at blood clots.
Enter DVT and PE…I was reading about them today. I am taking my blood thinners. Not the old, less expensive ones but the new and very expensive ones (donations can be sent via PayPal to karen@wellnessworksnw.com…I am not joking…these meds cost double what we usually spend on ALL my meds for an entire month, after insurance). We chose the new ones because the old ones have lots of side effects, I would have to come in for blood tests weekly and I would have to give up even more of my favorite foods and there aren’t many left.
My breathing has gotten much better the last two days but I am still tired really easily. The articles I read said it could take 3-6 months for my body to break down these blood clots.There is a chance my body will never break them down. That is not where my mind is going.
I had an appointment with my rheumatologist today. I like her but she is located inside PeaceHealth St John. I was very stressed while being there. I am thankful that I didn’t have a full blown anxiety attack and my blood pressure was only slightly high…I have lost 10 lbs since I was weighed on Friday…this place makes me crazy. When I checked in, the receptionist kindly asked me if I would like a wheelchair. I thanked her but told her I needed my exercise. I want these blood clots gone. I may move slow, but I am trying to get back to me.
I am glad I painted my toenails today…
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My name is Summer. That is how you can call me. I hope that I am a blessing to you. I am not perfect. I will fall again. But I am forgiven.
For anyone reading this that isn’t a Christian, unapologetically, I am a Christian, but I believe there is room for lots of beliefs and religions in the world. It is not my intent to offend people with different beliefs than I have and I would be open to open-minded conversations with no goals of changing anyone’s mind, but sharing information.
If you are interested in becoming a Christian…Do you know Jesus? Do want the Holy Spirit to fill you and give you understanding and salvation? Ask Him. Want someone to pray with you? Contact me.
If you would like to know Jesus as your friend, but want to make this amazing commitment by yourself please pray something like this:
Thank you Jesus that You are the Son of God, the God that created heaven and earth. Thank you Jesus that You came to earth in the form of a man so that You would be able to empathize with my humanity. Thank You that You did this in order to fulfill the promises You made at the foundation of the world.
I realize that I am a sinner and do things that hurt myself and keep myself away from you. Thank You that You died for my sins so that You could defeat death and bring me into Your life. Please forgive me.
I ask You to be Lord of my life. I ask you to heal my hurts and show me what my new life, empowered by You looks like. Thank You for Your mercy.
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