I am tired. Even my gynecological oncologist saw that in me. Since October of 2022 I have had an IUD and been on megestrol and had D&Cs every 3-6 months to treat and biopsy the cancer in the endometrial lining of my uterus. We had been doing this, hoping I could lose the weight I need to make a hysterectomy safer for me, but since megestrol causes weight gain, it has been impossible for me, even with the help of mounjaro, which I took for a year. So there came a point in the adventures in finding out you still might have cancer, that my doctor suggested we try radiation to kill the cancer and be done with it.
3 days after my one and only radiation treatment, I was in the hospital with blood clots in both lungs. Megestrol also causes blood clots. This was my second time almost dying. I will not take this drug anymore. So my doctor scheduled imaging. She wanted more information to help her make the next decision.
On August 12, 2025 at 3:45 pm I had an MRI. It was fine. I have learned to focus on the ceiling, if I can see it. For a few seconds, I could even see a tree outside the window. I try to see as far outside the tight fitting tube as possible. I could barely move but at least I could scratch my nose and touch my face when I felt a power surge on the left side. The energy of the MRI triggered my trigeminal neuralgia. After 40-some minutes I was exhausted. I counted to 20, I don’t know how many times. The triangle shaped pillow they put under my knees, was made for a smaller person than me so I had been holding up my right leg in one place for some time and I got a cramp. My back was killing me from the hard and very flat surface I had been laying on.
The pain was not any better the next week. The stress of the MRI had caused a fibromyalgia flare.
This is a post I made on Facebook on the morning after my PET scan on August 18, 2025
It took 4500 mg of liquid CBD for me to sleep through the night. It was extreme last night. I have never taken a dose over 2,250 mg before. I have a high pain threshold, which means it takes more to control my pain. I am used to taking enough to take the edge off. I only use cannabis and CBD products when I can’t sleep.
Most of the time I use doTERRA Deep Blue Stick to manage my pain and it just takes the edge off. If my pain is worse I just go to sleep. If I can’t sleep the above is my next tool. I can’t take Tylenol or Advil or other OTC meds without throwing up acid. I won’t take opioids, other than one or two days worth after a surgery, but I try to avoid that because I hate the side effects. I have been testing the Cannabis drops in order to know how to use them instead.
My body likes essential oils and hemp and cannabis in oil form, not smoking or vaping (I have tried). My body doesn’t like pain meds.
Thank God and my sweet friend for the CBD drops that are making sleep possible. I am waiting for them to kick in. I got a nap in earlier because of this stuff.
I have been under a lot of stress and my trigeminal neuralgia has been flaring up for a few days but is exponentially worse along with pain in all my joints and tendons since the PET scan today. I am wondering if it is from the radioactive solution they injected me with, since that is the only real difference from other imaging experiences. I think fibromyalgia does not like this stuff and is throwing a tantrum.
I feel like every part of me needs to pop but even if I can get it to pop, it doesn’t help. Stretching doesn’t help. More fluids doesn’t help. Even my eyeballs hurt. Hopefully this flare doesn’t last long.
The goal if the imaging was to see if we could find out if the one round of radiation had killed off the endometrial cancer. The night of August 26th, I could hardly sleep. I was so anxious to hear what my doctor had to say.
When Karen G Clemenson and I got there, I was happy to learn that I had lost 4 lbs since my last doctor appointment. Being off the megestrol was making it easier for me to lose weight, which is necessary for me to get the hysterectomy I need; especially due to where I carry my weight. The medical technician asked me about pain and I let her know that I had been suffering with severe burning pain in my vagina off and on, since I had had the radiation treatment. At that time, my pain was a 5. I had tried several things to help with the pain, but it was not going away.
When Dr Westhoff came in, she had me prepare for an exam. She was concerned about my pain. During the exam, she said that I looked healthy. Later I got results back that said everything was normal. At the time of the our meeting, she prescribed a low dose steroid suppository and told me to keep using coconut oil twice per day. Then it was time to talk about my imaging results.
What I had hoped for was not going to happen. My imaging results were inconclusive. They could not tell from the imaging whether I still had cancer or if the tissue was scar tissue from the many D&Cs I have had. Dr Dryer, my radiologist, wanted to stop with the brachytherapy and continue with radiation from the outside of my body. Dr Westhoff said that would make my abdomen more inflamed for further procedures. I personally did not think that radiation was a good experience and I don’t want to continue with it.
I want to continue to lose weight and have the hysterectomy. I feel this is the safest option for me. So in a few weeks I will see Dr Westhoff again. She wants to see how I am doing with weight loss and we will plan to put the IUD in so that we are doing something to control my hormones because I am refusing to take megestrol.
While I have been on this journey, my stomach has shrunk and I am eating smaller meals. I am focusing on getting more potassium in my meals because it is helping keep my trigeminal neuralgia under control and foods high in potassium like: avocados, Brussels sprouts, broccoli, and sweet potatoes and yummy.
Tired really isn’t the word. And this isn’t the adventure I want to be having. But I am really thankful for the people God put beside me. I don’t know what I would do without Karen and Jamie Holloway and everyone that is praying for me.
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My name is Summer. That is how you can call me. I hope that I am a blessing to you. I am not perfect. I will fall again. But I am forgiven. For anyone reading this that isn’t a Christian, unapologetically, I am a Jesus Follower, but I believe there is room for lots of beliefs and religions in the world. It is not my intent to offend people with different beliefs than I have and I would be open to open-minded conversations with no goals of changing anyone’s mind, but sharing information. If you are interested in becoming a Jesus Follower…Do you know Jesus? Do want the Holy Spirit to fill you and give you understanding and salvation? Ask Him. Want someone to pray with you? Contact me.
If you would like to know Jesus as your friend, but want to make this amazing commitment by yourself please pray something like this: Thank you Jesus that You are the Son of God, the God that created heaven and earth. Thank you Jesus that You came to earth in the form of a man so that You would be able to empathize with my humanity. Thank You that You did this in order to fulfill the promises You made at the foundation of the world. I realize that I am a sinner and do things that hurt myself and keep myself away from you. Thank You that You died for my sins so that You could defeat death and bring me into Your life. Please forgive me. I ask You to be Lord of my life. I ask you to heal my hurts and show me what my new life, empowered by You looks like. Thank You for Your mercy.
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