I am being treated for Trigeminal Neuralgia. 7 days of meds should get me into remission. I will see a neurologist as soon as possible not just because of this but other issues I am having that are not as painful, just annoying.

My episode today, started around 2 pm. It stopped at 2:25. I had enough time to go to the bathroom and call neurology to see if my referral came through but the minute I got someone on the phone it hit again. It was terrible and I felt bad because it was so hard to understand me. It stopped at 2:41.

It feels like there is a taser stuck in the side of my face and I cannot get it off when an episode happens. It is literally the worst pain I have experienced. You have to made peace with the pain at some point or drown; it is so hard to control your body when this happens. I was sweating from head to toe, my eyes were watering and I was drooling, I even wet myself. I would not wish this on my worst enemy.

Generally chewing, drinking, talking or brushing my teeth trigger it but the episode I had today started while I was lying in bed. I was not doing anything to trigger this. I also cannot force an episode so every bite or sip or word spoken is stressful because it might or might not be extremely painful.

Thankfully I have only had 1 second twinges since. I hope the meds work fast.

Xavier and I are now relaxing. He is very stressed by my episodes, he hides in the bathtub while I struggle. He is my nearly constant companion and we were so stressed out, as we left for the hospital, we forgot to talk to him before we left. We did not imagine being at the hospital for 6 hours and missed his feeding time; He has IBS and is on a special diet and feeding schedule. He got sick while we were gone. Poor guy! He is happily snuggled on my bathrobe and lights up if I pet him.

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My name is Summer. That is how you can call me. I hope that I am a blessing to you. I am not perfect. I will fall again. But I am forgiven.

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